Events & Webinars on Arthrogryposis
REFERENCE CENTER MEET-UPS – ARTHROGRYPOSIS
Join us for our upcoming #LetsTalkNMD webinar – Working Together to Build E-learning in Rare Neuromuscular Diseases: Lessons from Arthrogryposis.
June 11, 2026 | 5:00 PM EST
Featuirng:
Dr.Noémi Dahan-Oliel
Luca Patuelli
Dr. Craig Campbell
In this session, we’ll explore how collaboration between people with lived experience, families, clinicians, and researchers leads to more meaningful and accessible education in rare neuromuscular diseases.
In this session, you will:
- Learn how to co-develop knowledge through respectful partnerships
- Understand the role of multidisciplinary teams, including individuals with lived experience
- Explore how e-learning combines research with real-world insight
- See how co-development can strengthen communication & trust
The audience includes clinicians, researchers, the AMC community, and trainees.
Register now!
If you have questions, please contact research@muscle.ca
Past Events:
REFERENCE CENTER MEET-UPS – ARTHROGRYPOSIS
1st session:
From diagnosis to functional assessment
May 29, 2026 | 8:45 AM – 4:30 PM In
person and online
Participant check-in 8:45–9:00 a.m.
• Prenatal advances and remaining uncertainties in AMC – I. FILGES
• What’s the purpose of a nosologic classification of arthrogryposis? – K. DIETERICH
• Molecular features and signaling pathways in arthrogryposis – J. RENDU
Physical Medicine & Rehabilitation 11:00 AM–12:30 PM
• Assessment: the cornerstone of the care plan – V. Bourg, C. BOUILHOL, C. HUZAR, V.
THELLIER
• Building a goal-based care plan: from the newborn period through adulthood – V.
Bourg, C. HUZAR, V. THELLIER
• Main functional challenges for adults living with arthrogryposis and rehabilitation
care – A. CHRISPIN, A. AYRAUD, N. RAPTI, S. SCHTROCK
Reference Center tour 12:30 PM-1:15 PM
During the lunch break, come explore assistive tools that support upper-limb
movement with the rehab team.
Lunch Break
Roundtable 2 PM-4:30 PM
• Discussion on care pathways and the connections between community and hospital
care – families and professional teams – interprofessional collaboration
• Is there room for recommendations tailored to each type of arthrogryposis?
For more information, please email: centrearthrogrypose@chu-grenoble.fr
From the womb to adulthood
Post-symposium Booklet
September 28 to October 1, 2024
Montreal, Canada
