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Support Group List for Arthrogryposis Multiplex Congenita (AMC)

To support individuals and families living with AMC, we’ve compiled a list of organizations that offer access to aids and resources, organized alphabetically by country. Please note that the availability of services may vary by region.

Austria/Germany/Switzerland

The problems facing a family when a disabled child is born go far beyond what doctors can offer as part of their therapy. Parents are on help in psychological, nursing, educational, insurance and tax law issues in laid down. 

Colombia

The Arthrogryposis Multiple Congénita Colombia Foundation is a non-profit organization, aimed at people with AMC and their families, whose main objective is to make this condition visible in society in general.

Denmark

The National Association for Arm/Pendefects and AMC brings together people with and families for children born with arm/floor defects of many different kinds or AMC (Arthogryposis Multiplex Congenita).

Europe

The Eu­ro­pean Al­liance for Arthro­gry­po­sis is an in­for­mal work­ing group of self-​sup­port groups for arthro­gry­po­sis mul­ti­plex con­geni­ta through­out Eu­rope and with con­tacts to fur­ther groups be­yond.

France

The Eu­ro­pean Al­liance for Arthro­gry­po­sis is an in­for­mal work­ing group of self-​sup­port groups for arthro­gry­po­sis mul­ti­plex con­geni­ta through­out Eu­rope and with con­tacts to fur­ther groups be­yond.

Mexico

The Mexican Arthrogryposis is a foundation dedicated to AMC Patients and their Families.

Netherland

Spierziekten Nederland stands up for people with a muscular disease. Spierziekten Nederland is concerned with better quality of care.

New Zealand

The Arthrogryposis Group New Zealand (TAG-NZ) our mission is focused on he provision & delivery of advocacy, promotion, education, prevention, research, support & information services for those born with AMC throughout New Zealand

Norway

The AMC Association is the place for everyone who has, or knows someone who has, arthrogryposis multiplex congenita. We are here to support, inform and bring together people living with this rare condition.

Spain

The AMC Association is the place for everyone who has, or knows someone who has, arthrogryposis multiplex congenita. We are here to support, inform and bring together people living with this rare condition.

Sweden

The AMC Association in Sweden strives to improve the quality of life for people with AMC and their families. Our main goal is to build a strong and inclusive community where members can exchange experiences, share knowledge and get support in their everyday lives.

United Kingdom

The Arthrogryposis Group (TAG) is the UK Charity for people living with Arthrogryposis Multiplex Congenita (AMC)

United States

Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) is one of the leading worldwide organization dedicated to supporting individuals and families affected by Arthrogryposis (AMC)